Apr 5, 2012

Parkinson's Awareness Month

"There's no point in worrying because if something (bad) does happen, then you've lived it twice." Michael J. Fox

One of the notable features of Lewy Bodies Dementia is the parkinsonian aspect.  Tremors, muscle rigidity, retardation of movement, shuffling, difficulty with balance and mobility.  April is Parkinson's Awareness Month, and - while Lewy Bodies Dementia is not the same as Parkinson's, perhaps their research can overlap and help each other.  The Michael J. Fox Foundation has raised $285 million to advance understanding of and research into Parkinson's.  In an interview Michael J. Fox says that he is not 'fighting' Parkinson's, he is accepting it.  He goes on to say, "Acceptance doesn't mean resignation; it means understanding that something is what it is and that there's got to be a way through it."  An admirable approach.  It seems to me that it is fruitless to 'fight' the disease of Lewy Bodies Dementia, but to navigate our way through this disease, and the role of caregiving, with dignity and openness to ways to make the path smoother.

No comments:

Post a Comment